The struggles that happen with the Neurodivergent family that is CP

With the rise of death of children living with Cerebral Palsy in our society, it has come to our attention that it's becoming at an alarming rate.

With the rise of living in Kenya, even the ordinary Kenyan struggling to make ends meet to put food on the table. We forget that we have a community that struggles to make ends meet to provide for a child that needs at most support, the children with cerebral palsy that need medication to manage co-existing conditions such as epilepsy that are common amongst us.

Anticonvulsants are A type of drug that is used to prevent or treat seizures or convulsions by controlling abnormal electrical activity in the brain. These very drugs are necessary to manage seizures and are used depending on how aggressive the seizures are on the patient.

It has its benefits but the most effective anticonvulsants are very expensive..... the worst coincidence is that most kids with autism and CP have seizures and hence need therapy that also adds costs. Therapy can be trained to caregivers and they can now pass it on by helping their children identify their strengths.

Medical covers are limited with some that can afford and recommended facilities don't even stock some of the good anticonvulsants that are difficult to get in most dispensing chemists.

It's a lifetime journey so it becomes overwhelming.

How can we prevent the increase in deaths?😥

How do we get the medication affordable and available?


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Preventing the rise in mortality rates demands a multi-pronged strategy including health education, improved access to healthcare, public health initiatives, addressing inequalities, emergency services enhancement, and mental health support. Ensuring affordability and availability of medication involves measures like price regulations, promoting generic drugs, negotiating with pharmaceutical companies, international collaboration, research funding, health insurance expansion, telemedicine adoption, pharmacy benefit programs, non-profit initiatives, and advocacy efforts. A comprehensive approach involving government, healthcare entities, pharmaceutical firms, non-profits, and communities is necessary to effectively combat mortality increase and make essential medications accessible to all.